Perceptions Across Ethnicities to Develop an Adapted Intervention for Breathlessness - Trial NCT06269172

Timeline & Enrollment

Primary Outcome

Art Workshops, Focus Groups and Semi-Structured Interviews

Summary

An individual's experience of their breathlessness is influenced by multiple factors
 including their medical condition, psychology, sociological and situational circumstances
 which will include ethnicity. There is currently a lack of evidence exploring the impact of
 ethnicity in the experience and presentation of breathlessness.
 
 The non-medical management of breathlessness in respiratory diseases includes pulmonary
 rehabilitation (PR). PR is a highly evidenced exercise-based intervention to help manage
 breathlessness, improving health-related quality of life and improving survival. Recent
 audits in England and Wales showed 89% of patients attending PR were recorded as having a
 White British ethnicity which is in contrast to national ethnicity demographics. This may be
 because the cultural acceptability of PR components are not fully considered. Therefore, this
 study will explore how individuals with cardiorespiratory disease from different ethnicities
 from the Leicestershire population experience and manage their breathlessness through art
 workshops, focus groups and interviews. Informed by these results, the study team will work
 with individuals from under-represented ethnicities and key stakeholders to co-design
 adaptations of PR that may improve the management of breathlessness in underrepresented
 ethnicities that do not attend conventional PR programmes.
 
 The study is funded by the Wellcome Trust as part of the Leicestershire Health Inequalities
 Improvement Programme at the University of Leiceste

ICD-10 Classifications